Author Archives: daisyfund

About daisyfund

Daisy's Eye Cancer Fund educates about retinoblastoma, empowers medical communities to provide effective care and enables families to access that care so their children have the very best opportunities to overcome eye cancer and enjoy a happy, healthy life. DECF is a registered charity in England, a special fund at SickKids Foundation in Canada, a registered NGO in Kenya and a 501(c)(3) nonprofit in the United States.

Forming A Therapeutic Alliance: prescription for success

A positive, open relationship between parents and the child’s medical team is vital throughout treatment and beyond. A therapeutic alliance requires good communication, mutual trust, respect and care, as well as knowledge and skills to provide high quality medical care. Continue reading

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Staging and Classification for Intraocular Retinoblastoma

Intraocular retinoblastoma is classified and staged to help doctors describe the degree of cancer in a child’s eye, determine best treatment options, define potential for cure / eye salvage, and compare impact of different therapies. Each eye is classified to define potential for safely saving the eye / vision. Stage of bilateral Rb is based on the worst affected eye, as an indicator of risk to the child’s life. When an eye might be classified into one of two groups, the higher risk group should be selected. This reduces risk of eye loss or life threatening relapse due to under-treatment. Continue reading

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White Pupil in Flash Photos: know the facts and how and when to act!

Awareness is increasing of retinoblastoma’s early sign – a white pupil seen in flash photos and dim light.  This is great news as awareness is the key to early diagnosis of this aggressive eye cancer affecting babies and young children.  … Continue reading

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Walking Through The Fire

In June last year, I participated in a firewalk workshop to raise money for Daisy Fund.  I wrote an article for a local magazine and for the blog of the event leader, Tony Simons.  A few people have asked me … Continue reading

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In Her Memory…

11 years ago, a new baby girl was born in Botswana. Four short years later, retinoblastoma claimed her life. Her name means love, and today, her legacy continues to build hope for other children around the world. Continue reading

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How Do We Achieve Early Diagnosis?

Retinoblastoma specialists agree that early diagnosis of eye cancer is a child’s best hope of healthy vision. In many parts of the world, early diagnosis is a child’s only hope of cure. Yet in developed countries, 80% of children lose at least one eye, and in developing countries, 80% of children die. Here we consider the potential and limitations of the six main solutions proposed. Continue reading

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Emerging Priorities in Preventing Life-Long Negative Treatment Effects

“Cure” does not just mean destroying cancer, but also healing the whole child so they can embrace life with confidence.  The last 3 decades has seen chemotherapy replace radiotherapy as primary eye saving treatment, saving more eyes without the effects … Continue reading

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Beyond Retinoblastoma

“Retinoblastoma” was part of my vocabulary growing up.  My father lost both eyes to the cancer before his second birthday, my mother was a co-founding board member of FISHS and the Retinoblastoma Society (now the Childhood Eye Cancer Trust), and … Continue reading

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Are You Child Cancer Aware?

The earlier cancer is diagnosed, the easier it is to treat, often requiring less intense therapy and fewer invasive procedures that have lower cost physically, emotionally and financially. Awareness of childhood cancer is key to achieving early diagnosis, saving lives and limiting the burden of cancer treatment on the child, family and wider society. Continue reading

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Driving With Monocular Vision

In many countries. Driving with vision in only one eye is legal. However, there are some Important things to bare in mind when driving with monocular vision. Continue reading

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